Archive for the 'MARF' Category

Friends of Warren Zevon benefit concert for asbestos disease awareness and research

December 8th Concert, Presented by Jones House Music, to Be Held at Maverick Saloon in Santa Ynez, CA – Featuring Tributes from Jordan Zevon and Other Well-Known Artists.

WHO:             Friends of Warren Zevon Featuring:

•          Jordan Zevon, Warren Zevon’s Son and ADAO National Spokesperson whose debut album is scheduled for release in early 2008 on New West Records

•          Mike Campbell and The Dirty Knobs, Rock and Roll Hall of Fame guitar player with The Heartbreakers; performed on Zevon’s Grammy winning album, the Wind

•          Kenny Edwards, co-founder of the Stone Poneys with Linda Ronstadt and Bryndle with Karla Bonoff; recorded numerous Zevon songs and performed on Zevon’s Excitable Boy album

•          Matt Cartsonis, multi-instrumentalist and composer for film, television and various commercials; performed in Zevon’s final tour

•          Phil Cody, singer and songwriter; toured with Zevon in the 1990’s

•          Plus - up and coming young artists: Crosby Loggins and Paul Cartwright and Friends

WHAT:           Tribute Concert to Warren Zevon, who was taken in 2003 by the asbestos cancer, mesothelioma. Presented by Jones House Music, the concert will include songs from a myriad of performers who played with Zevon in various settings, including for his final album, The Wind, which earned two posthumous Grammy Awards in 2004 for Best Rock Performance By A Group or Duo for “Disorder in the House” along with longtime friend Bruce Springsteen, and Best Contemporary Folk album.

Warren Zevon’s legendary career includes over 18 albums, 2 gold records, 1 platinum record, 2 Grammy awards, an honorary presidential award from NARAS, and numerous Songwriter of The Year Awards from publications like Rolling Stone Magazine. His biggest hit, “Werewolves of London” continues to make critic lists as one of the best Rock songs of all time.

Funds will be used to support the Asbestos Disease Awareness Organization (ADAO) and the Mesothelioma Applied Research Foundation (MARF). The occurrence of asbestos-related diseases, including mesothelioma, lung cancer and asbestosis, is growing out of control. Studies estimate that during the next decade, 100,000 victims in the United States will die of an asbestos related disease – equaling 30 deaths per day.

Tickets are $35 and are available starting November 5 at http://www.warrenzevontribute.com or at the Maverick Saloon http://www.mavericksaloon.org.

Lottery tickets will also be sold at the event to raise funds for MARF and ADAO with an exciting collection of prizes and in addition to the show, tickets for a wine tasting Meet and Greet will be available for purchase.

WHERE: Maverick Saloon
3687 Sagunto Street
Santa Ynez CA 93460

WHEN: Saturday, December 8, 2007
4:00 pm – 7:00 pm

CONTACT:    Asbestos Disease Awareness Organization (ADAO)
Douglas Larkin
Office: 703-250-3590 x1245
Mobile: 202-391-1546
doug@AsbestosDiseaseAwareness.org

About Asbestos Disease Awareness Organization

Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO seeks to give asbestos victims a united voice to help ensure that their rights are fairly represented and protected, and raise public awareness about the dangers of asbestos exposure and the often deadly asbestos related diseases. ADAO is funded through voluntary contributions and staffed by volunteers. For more information visit www.asbestosdiseaseawareness.org.

Mesothelioma Applied Research Foundation

The Meso Foundation is the national nonprofit dedicated to eradicating mesothelioma, the fatal cancer caused by asbestos exposure, through the funding of cutting-edge research projects across the globe. To date the Foundation has funded over $4 million dollars in research. Additionally, the Foundation provides practical support for patients and their families through education, support, and guidance offered through our website, meso specialist and nurse practitioner, and our volunteer outreach programs. To learn more visit: www.curemeso.org.

Friends of Warren Zevon: raising awareness of mesothelioma

By PR Newswire

SANTA BARBARA, Calif., Nov. 1 /PRNewswire/ — The Maverick Saloon will host a tribute to the late songwriter Warren Zevon on December 8, 2007 from 4 PM until 7 PM to raise research money and awareness for Mesothelioma, the disease that claimed the life of the much loved and respected troubadour. Tickets for the show are $35.00 and will be available November 5, 2007 at The Maverick Saloon or by going on the web to www.syvjoneshouse.com.

The proceeds from the show will go to the Mesothelioma Applied Research Foundation located in Santa Barbara, CA and the Asbestos Disease Awareness Organization. Several well-known artists who played with Zevon will join Zevon’s son ADAO National Spokesperson Jordan Zevon at the world famous saloon to perform Warren Zevon songs. Zevon’s final album The Wind earned two posthumous Grammy Awards in 2004 for Best Rock Vocal Performance and Best Contemporary Folk album.

Rock and Roll Hall of Fame guitarist Mike Campbell will be performing with his band The Dirty Knobs. Campbell, best known for his work as the lead guitar player with Tom Petty and The Heartbreakers, has appeared on several Warren Zevon albums including the Grammy winning The Wind. Santa Barbara resident Kenny Edwards will also be on hand to play. Edwards, folk-rock veteran and co-founder of the Stone Poneys with Linda Ronstadt and Bryndle with Karla Bonoff, recorded several hits for Ronstadt that were written by Warren Zevon, including Carmelita, Hasten Down the Wind, and Poor Poor Pitiful Me. In addition, Edwards played on some of Warren’s albums as well, including Zevon’s best-known album Excitable Boy. Joining Campbell and Edwards will be LA based multi-instrumentalist and composer Matt Cartsonis. Cartsonis has written several scores for film, television and various commercials. Cartsonis has worked with both Zevon and Edwards. Cartsonis also has the distinction of playing with Zevon on Zevon’s final tour before he was diagnosed with mesothelioma. Finally, rounding out the roster of players who worked with Zevon is Los Angeles based singer songwriter Phil Cody who spent a significant amount of time in the 1990s touring with Zevon and shares stories and insights in the new Zevon biography “I’ll Sleep When I’m Dead” by former Zevon spouse Crystal Zevon.

Several up and coming young artists from the central coast, including Crosby Loggins, Paul Cartwright and the Nathan McEuen Band will open the show with their renditions of Zevon songs. For more information please contact Karen or Kara Jones, 805 688-7786 or go to www.syvjoneshouse.com.

SOURCE Mesothelioma Applied Research Foundation

Copyright 2007 PR Newswire. All Rights Reserved

MARF mesothelioma symposium update

San Pedro, CA - October 5, 2007
From the Law Office of Roger Worthington

Yesterday began the fourth International Symposium on Malignant Mesothelioma hosted by the Mesothelioma Applied Research Foundation (www.marf.org).

The first day of the symposium was marked by the senate’s landmark passage of the Ban Asbestos Act. Over 115 meetings were scheduled with representatives and legislators from over 25 states with approximately 120 mesothelioma patients, researchers, families, and advocates who have been affected by asbestos disease. The volunteers “stormed” Capitol Hill and were present when Sen. Patty Murray (D-WA), Sen. Johnny Isakson (R-GA) and Sen. Barbara Boxer (D-CA) announced the long-awaited passing of this crucial legislation.

This morning, the medical portion of the symposium began with Dr. Courtney Broaddus’s excellent analogy explaining the creation of a mesothelioma. Likening the evolution of the cancerous cell to a speeding, out of control automobile with an unending tank of gas and no way of breaking or slowing down, all attendees were left with a gripping understanding of mesothelioma tumors and how they work. Dr. Broaddus works at the Lung Biology Center at the University of California at San Francisco.

Following Dr. Broaddus was Dr. Harvey Pass of the New York University Cancer Center. Dr. Pass discussed the latest research and the discovery and validation of potential genomic-based biomarkers for asbestos-related neoplasms.

As the Chairman of the Science Advisory Board of MARF, Dr. Pass addressed the mesothelioma patients in the audience as the “shareholders of MARF” whom he was here to present the latest “deliverables.”

Dr. Pass detailed the latest efforts regarding early detection for mesothelioma. He went into detail about the studies performed on biomarkers in the serum and plasma of mesothelioma patients and cohorts who have been exposed to asbestos, including biomarkers such as Osteopontin,. According to Dr. Pass, “It is important to determine what proteins are in the tissue of a mesothelioma patient that make the tumor different.”

Dr. Pass stressed the need for other clinics, hospitals, and laboratories to work together and share data. “We cannot discover in isolation. All the centers have to work together and the passing of the bill yesterday will work for all of us!”

r. Lee Krug and Dr. John Chabot followed Dr. Pass to the podium to discuss the current multi-modal treatment for pleural and peritoneal mesothelioma. Dr. Krug, from the Memorial Sloan Kettering Cancer Center, compared the two types of surgeries for pleural mesothelioma, the extra-pleural pneumonectomy (EPP) and the pleurectomy with decortication (P/D). He also talked about the survival rates of the surgeries in conjunction with chemotherapy and radiation as well as neoadjuvant chemotherapy. However, most of his discussion centered on the EPP with chemotherapy/radiation. In summary, the median survival rate of patients treated with EPP and chemo/radiation was 13 months.

Dr. Chabot, of the Columbia University Medical Center in New York, talked about his preferred treatment for peritoneal mesothelioma, which includes a laparotomy with debulking followed by intraperitoneal chemotherapy and then a second laparotomy with definitive resection and heated intraperitoneal chemotherapy.

Completing the morning session was Dr. Hedy Kindler of the University of Chicago and Mary Hesdorffer, medical liaison of MARF, discussing the benefits and side effects of Alimta used in conjunction with Cisplatin and/or Carboplatin. Dr. Kindler went into detail about how an oncologist best determines the chemotherapy for a mesothelioma patient and how to administer the chemotherapy. She focused on Alimta, which is the only FDA- approved chemotherapeutic agent for mesothelioma. She talked about the ongoing clinical trials using Alimta alone (median survival rate of 10 months) or with Cisplatin (survival rate of 12 months) or with Cisplatin alone (survival rate of 9 months).

Ms. Hesdorffer went into detail on how best to prepare and address any side effects from the drugs used in any of these combinations.

Historic asbestos ban legislation passed by U.S. Senate

WASHINGTON, Oct. 4 /PRNewswire-USNewswire/ — Asbestos in the U.S. maybe breathing its last gasps, as the Senate today passed the Ban Asbestos inAmerica Act. Passage in the House is expected to be imminent. Championed by Senator Patty Murray (D-WA) for the past six years, this legislation would finally ban asbestos, invest federal funding in development of effective treatment for asbestos’ most deadly cancer, mesothelioma (meso), and other asbestos-related diseases, and launch a public education campaign. With bipartisan support provided by Senator Johnny Isakson (R-GA), the bill was approved unanimously by the Senate Committee on Environment and Public Works, chaired by Senator Barbara Boxer (D-CA), on August 2, and passed by the full Senate late this afternoon.

Not coincidentally, The International Symposium on Malignant Mesothelioma, sponsored by the Mesothelioma Applied Research Foundation (Meso Foundation), began today in Washington, D.C. One hundred and twenty Meso Foundation advocates from 26 states converged on the Capitol to meet individually with their Senators and Congressional representatives, educate them about the tragic toll of meso, urge them to finally ban asbestos, and most importantly ask Congress to invest the federal research funding necessary to develop effective treatments for meso. The advocates included patients, family members, individuals who had lost a loved one to meso, and a handful of expert meso researchers and clinicians. In comments to the group immediately following the legislation’s passage in the Senate, Senator Murray thanked the Meso Foundation for its work, and credited the advocates for their key role in the passage of this historic legislation.

“Today marks the first time this constituency is on the steps of Capitol Hill as an entire community,” said Chris Hahn, Executive Director of The Meso Foundation. “We believe the human tragedy of mesothelioma must be addressed urgently.”

Asbestos is so deadly that there is no known safe level of exposure. Even a tiny bit of fiber can cause disease. Studies show that asbestos exposure kills up to 10,000 Americans each year.

Those at risk include U.S. military personnel, shipyard workers, brake mechanics, roofers, cement workers, demolition workers, homeowners doing renovations, spouses and children of workers…the list goes on and on. Exposure to asbestos can cause a variety of cancers, the most deadly being mesothelioma. Asbestos diseases usually do not manifest themselves until decades after a person is exposed to asbestos fibers, but then the diseases develop rapidly. Most patients with mesothelioma die within two years of being diagnosed.

“Asbestos is deadly, it’s devastating families and communities, and every day that we wait to ban it, we’re sentencing more Americans to an early and avoidable death,” explains Senator Patty Murray (D-WA).

The Symposium continues this evening, as more than 200 participants are expected to join in a moving Tribute Ceremony and Candlelight Vigil on the West Lawn at the Steps of the Capitol, featuring symposium panelists and participants, including Susan Vento, whose late husband, Congressman Bruce Vento (D-MN), lost the battle against pleural mesothelioma seven years ago. Friday, October 5th and Saturday, October 6th, the Symposium continues in the Westin City Center, 1400 M. Street, NW, in Washington, D.C., with meso scientific presentations, information and support for meso patients and family members, and further advocacy to help secure ultimate passage of the bill.

On the House side, Congresswoman Betty McCollum (D-MN) has introduced the Bruce Vento Ban Asbestos and Prevent Mesothelioma Act of 2007 (H.R. 3339), to ban asbestos in the United States and expand prevention, research, and treatment for asbestos-related diseases, including mesothelioma.

“It’s long past time that our country banned asbestos,” McCollum said. “After decades of widespread and unknowing exposure to this deadly substance, Americans should be able to rest assured that they are no longer at risk of having their lives cut short by asbestos exposure.”

Meso Foundation Executive Director Chris Hahn explains the importance of the fact that the legislation not only bans asbestos but provides the beginnings of an investment in medical research for meso. “Meso’s latency is as long as 50 years, so today, millions of Americans who were exposed in the past five decades are at risk. And it is inevitable, given today’s
current levels of asbestos exposure, that death from mesothelioma will continue for decades. So alongside the ban, there needs to be much greater funding for research and treatment of this aggressive disease.”

Former Minnesota Congressman Bruce Vento died in 2000 from mesothelioma, likely caused by minimal contact with asbestos while working in factories as a young man. Vento represented Minnesota’s Fourth District from 1977 to 2000.

“Bruce would be so proud to know that his friend and successor is leading the way in the House for passage of a bill that will ban asbestos, increase public awareness of the very real risks related to asbestos and fund critically needed medical research for mesothelioma and other asbestos-related diseases,” said Sue Vento, wife of the late Congressman. “Rep. McCollum’s legislation is definitely needed and is much appreciated by those who have experienced the devastation of mesothelioma and other diseases caused by asbestos.”

The International Symposium on Malignant Mesothelioma will feature medical panelists and speakers: Hon. Patty Murray, United States Senator; Hon. Betty McCollum, United States Congresswoman; Chris Hahn, Executive Director, Meso Foundation; Susan Vento, Board of Directors, Meso Foundation; Mary Beth Buchholz, Vice President, Government Affairs, BatesNeimand; Courtney Broaddus, MD, University of California, San Francisco; Harvey Pass, MD, New York University Comprehensive Cancer Center; Lee Krug, MD, Memorial Sloan-Kettering Cancer Center; John Chabot, MD, Columbia University Medical Center; Hedy Kindler, MD, University of Chicago; Mary Hesdorffer, NP, Medical Liaison, Meso Foundation; Daniel Sterman, MD, University of Pennsylvania Medical Center; Raffit Hassan, MD, National Cancer Institute. For more information or to arrange interviews with International Symposium on Malignant Mesothelioma participants, please contact Chris Hahn at (805) 252-8955 or Paul Marcone at (571) 338-2346 or paul@paulmarconellc.com.

Speakers will be available for photo ops and interviews. Program overview can be found at: http://www.marf.org/Documents/Sym07V2.pdf

SOURCE Mesothelioma Applied Research Foundation

Make plans to attend the International Mesothelioma Symposium, Oct. 4-6, Washington, D.C.

Support the International Mesothelioma Symposium

San Pedro, CA - Aug. 6, 2007 - What happens when you put mesothelioma patients, researchers, advocates, doctors, legislators, and the media all in one place? You get the International Mesothelioma Symposium in Washington, D.C.

Sponsored by the Mesothelioma Applied Research Foundation, this is the single most important event for people affected by and involved with mesothelioma. This extraordinary three-day event will include:

Day 1 - Advocacy
Meet your senators and congressmen/women to tell your story and urge them to support research. Candlelight vigil at the Capitol that evening.

Day 2 - Science
Leading physicians and scientists will discuss the latest research, treatments, and clinical trials.

Day 3 - Community
Connect with other patients, family members, and advocates who are committed to curing mesothelioma.
MARF is an extraordinarily diverse organization supported by patients, their families, physicians, law firms, asbestos companies, and advocates. You can help develop better treatment, prevention, and a cure by donating to MARF or by signing up to attend the symposium. The Law Firm of Roger G. Worthington is proud to be a Gold Sponsor of this important international event.

Make plans to attend the International Mesothelioma Symposium, Oct. 4-6, Washington, D.C.

San Pedro, CA - Aug. 6, 2007 - What happens when you put mesothelioma patients, researchers, advocates, doctors, legislators, and the media all in one place? You get the International Mesothelioma Symposium in Washington, D.C.

Sponsored by the Mesothelioma Applied Research Foundation, this is the single most important event for people affected by and involved with mesothelioma. This extraordinary three-day event will include:

Day 1 - Advocacy
Meet your senators and congressmen/women to tell your story and urge them to support research. Candlelight vigil at the Capitol that evening.

Day 2 - Science
Leading physicians and scientists will discuss the latest research, treatments, and clinical trials.

Day 3 - Community
Connect with other patients, family members, and advocates who are committed to curing mesothelioma.

MARF is an extraordinarily diverse organization supported by patients, their families, physicians, law firms, asbestos companies, and advocates. You can help develop better treatment, prevention, and a cure by donating to MARF or by signing up to attend the symposium. The Law Firm of Roger G. Worthington is proud to be a Gold Sponsor of this important international event.

The Law Office of Roger G. Worthington, P.C. | 273 W. 7th | San Pedro | CA | 90731

Ban Asbestos Act moves to House: MARF plays leading role

Yesterday, all of us who care about ending asbestos’s toll of human suffering made a historic step forward. Senator Patty Murray’s bill to finally ban asbestos in the USA, and provide federal research funding to develop treatments for mesothelioma and other asbestos related diseases passed from its committee by unanimous, bipartisan vote. The Ban Asbestos in America Act of 2007 will now advance with very strong momentum to the Senate floor for final vote. Click here for full news release.

The Meso Foundation helped draft this legislation and has worked closely with Senator Murray the past six years, providing expert testimony and working v igorously on Capitol Hill to support it. Many of you responded to our Action Alerts with calls, letters, emails and personal visits to your Senators, asking them to cosponsor the bill. In fact, the bill gained 19 Senate cosponsors, including much of the majority leadership. This strong support was key to its overwhelming success yesterday, and we are deeply grateful to all of you for your advocacy.

Now, the action shifts over to the House side of Congress. The Meso Foundation has been working there all year to develop robust support for the legislation and find a key Representative who would lead it in the House. We have found a vigorous ally in Congresswoman Betty McCollum. Tomorrow, Congresswoman McCollum will introduce in the House the companion version of the bill. She has titled it the “Bruce Vento Ban Asbestos and Prevent Mesothelioma Act of 2007,” honoring Congressman Bruce Vento, who died from mesothelioma in 2000, and recognizing the immense contribution of his wido w, Meso Foundation Board member Sue Vento, in pushing this legislation toward reality.

Much remains for all of us to do to make this legislation a reality, ban asbestos, fund critically needed research and save countless lives. The legislation must pass its relevant committees in the House, be passed by both the full House and Senate, then signed into law by the President. Also, the appropriation of the actual research and education funding authorized by the bill must be included in the budget legislation. You can make a key difference! Continue to respond to our Action Alerts. And be part of the 2007 Symposium and the Call for a Cure advocacy day on October 4. We will prepare you and arrange for you to meet personally with your Senators and Congressional Representative and/or their legislative assistant directly responsible for health and medical issues. Your personal stories and advocacy will have a profound impact. Registration forms and more information are available on the website, the recent Breath of Hope newsletter, and the full Program Announcement which will be mailed soon.

We have made huge progress and with continued commitment, we will ban asbestos and cure meso!

Yours in the fight,

Chris

Christopher E. Hahn
Executive Director
Mesothelioma Applied Research Foundation
PO Box 91840
Santa Barbara, CA 93190
(805) 563-8400
www.curemeso.org

Information about mesothelioma medical and legal options provided by the Law Office of Roger G. Worthington, P.C., www.mesothel.com.

MARF praises bipartisan efforts that moved Ban Asbestos Act out of committee

WASHINGTON, July 31 /PRNewswire-USNewswire/ — The Mesothelioma Applied Research Foundation today commended Members of the Senate Environment and Public Works Committee, under the direction of Senator Barbara Boxer (D-CA), for approving the Ban Asbestos in America Act of 2007. The bill was introduced by Senator Patty Murray (D-WA) in March, and now with the Committee’s approval, it will proceed to the full Senate for final passage.

Nicholas Vogelzang, MD, chairman of the Foundation’s Board of Directors and director of Nevada Cancer Institute, emphasized the importance of the bill. “This legislation promotes necessary federal research to find effective treatments for mesothelioma. It is an end for asbestos and hopefully a new beginning for patients,” Vogelzang said.

Sue Vento of St. Paul, Minnesota and a member of the Foundation’s Board of Directors, applauded the progress made toward passing this legislation. In particular, Ms. Vento recognized Senator Patty Murray for her leadership in working the past six years to protect Americans by banning the use of this known carcinogen. “So many people I talk with are truly shocked to learn that asbestos has not been banned in this country. Most mistakenly believe it was banned decades ago. But those who have experienced the devastation of mesothelioma and other diseases caused by asbestos know how urgently Senator Murray’s legislation is needed, and are very grateful,” Vento said.

Ms. Vento is the wife of the late U.S. Rep. Bruce Vento who lost his battle with mesothelioma in 2000, just nine months after his initial diagnosis. His exposure to asbestos came in the early 1960s when he worked in factories and a brewery in St. Paul, Minnesota. Rep. Vento served Minnesotans for 12 terms in the U.S. House of Representatives.

Mesothelioma is a malignant tumor that aggressively and painfully invades the lining of the lungs, heart or stomach until it destroys the vital organs. It is caused by exposure to asbestos. According to the Centers for Disease Control and Prevention, almost 3,000 Americans die from mesothelioma each year. Reported mesothelioma deaths have been rising since 1999, and many experts believe the number of annual deaths is even greater than reported because mesothelioma is difficult to diagnose and is often misdiagnosed as lung or gastrointestinal cancer. Widespread asbestos exposures resulting from 9/11 and Hurricane Katrina are expected to cause additional deaths.

The legislation directs the National Institutes of Health to create a $50 million Asbestos-Related Disease and Treatment Network, comprised of ten research and treatment centers around the country. In addition, the National Institute for Occupational Safety and Health would be tasked to report back to Congress on the current state of science regarding the health effects of non- asbestiform minerals and elongated mineral particles and methods for measuring and analyzing them. The report would include recommendations for future disease research, and a follow-up report would also provide recommendations for ways in which to identify and distinguish mineral particles that may cause disease from those that do not.

The Mesothelioma Applied Research Foundation has actively worked with Senator Murray in support of the legislation for the past six years. In March, Senator Murray as chair of the Senate HELP Subcommittee on Labor and Work Safety, held the subcommittee’s first hearing in conjunction with her introduction of the legislation. Ms. Vento and Dr. Harvey Pass of the NYU School of Medicine, testified at the hearing on behalf of the Foundation.

Since 1999, the Mesothelioma Applied Research Foundation has championed research and advocacy to overcome mesothelioma. The Foundation has awarded more than $4 million in seed money grants to the brightest investigators around the world working to develop treatments for the disease. The Mesothelioma Applied Research Foundation is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma.

CONTACT: Chris Hahn Executive Director, 805-563-8400, chahn@curemeso.org Mesothelioma Applied Research Foundation

Information about mesothelioma medical and legal options provided by the Law Office of Roger G. Worthington, P.C., www.mesothel.com.

CONTACT: Chris Hahn, Executive Director of Mesothelioma Applied Research
Foundation, +1-805-563-8400, chahn@curemeso.org